The Coordination of Care for Children with Complex Care Needs is a pilot project that was created to find out if a single point of access to care would improve the quality and coordination of care for families with children and youth with complex medical needs. Launched in March 2010, the pilot program provides 21 participants with a single access to care.
The project’s objectives are to provide family-centered care coordination across the system, facilitate communication and collaboration between care providers, while relieving the burden of care coordination on the families in order to improve the patient’s health status.
The program allows parents to be parents and saves them from acting as medical advocates for their children. Each patient’s medical information and needs is kept on file in a single document called the Single Point of Access, or SPOC. This document tells their story and communicates their conditions and recommended treatments.
Now in its second year, the results of the project have been amazing. Results indicate a reduction is Emergency Department visits, reduced incident of inpatient stays as well as reduced length of stays and an increase in clinic visits. The kids on the complex care pilot project are all doing better. Parents have all expressed their joy at seeing that their children are now better cared for, need fewer hospitalizations and medical tests and report an all-around happier home environment where they can be ‘normal families’ and enjoy their kids.